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dancingqueen · Posted: Mon Sep 18, 2006 1:40 pm Post subject: Poland Syndrome

Has anyone worked with a child/student with this?

i have done some research, but interviewed a student today who has this, and wondered if anyone else has come across it, and if there is anything i need to look out for or take into account

i will post the links that i have found later, as im at work at the moment

thanks in anticipation Very Happy

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And quit running for that runaway bus -
Cos those rosey days are few
And - stop apologising for the things you've never done,
Cos time is short and life is cruel -
But it's up to us to change

busybee · Posted: Mon Sep 18, 2006 3:13 pm Post subject:

Sorry dq, never heard of it. What difficulties does someone have if they have it?

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trueblue · Posted: Mon Sep 18, 2006 3:41 pm Post subject:

Snap, I had not heard of it but found this web site if anyone else is interested

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busybee · Posted: Mon Sep 18, 2006 3:47 pm Post subject:

Just looked at the link True, very interesting, wonder what restrictions/allowances will have to be made for a child/student with this?

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dancingqueen · Posted: Mon Sep 18, 2006 4:35 pm Post subject:

i will tell you about my student later, and will be making NO allowances for her

she is great!!!

thanks for the link true, i have been looking about this afternoon at sites

_________________

And quit running for that runaway bus -
Cos those rosey days are few
And - stop apologising for the things you've never done,
Cos time is short and life is cruel -
But it's up to us to change

Caroline · Posted: Mon Sep 18, 2006 6:36 pm Post subject:

Sorry I can't help I've never heard of it.

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dancingqueen · Posted: Mon Sep 18, 2006 6:43 pm Post subject:

Its what Jeremy Beadle has

my student was born with 4 fingers, one of which was regrafted and made into a thumb. The muscles of the right side of the body havent developed in the same way or at the same speed as the other side, she was bullied at school and suffered from an eating disorder because of this

but....she shook my hand with her 'special' hand which is something she hardly ever does, and did a wonderful piece of writing for me. Im hoping that the other students we have selected for the course will be good for her and build her self esteem which has been severely undermined

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_________________

And quit running for that runaway bus -
Cos those rosey days are few
And - stop apologising for the things you've never done,
Cos time is short and life is cruel -
But it's up to us to change